It is hard on weeks like this, to not think about Frankie. It is hard enough on a week that a client dies. It is hard enough without that in this dread six weeks. The six weeks between April 1st and May 16th I dread every year. I am a bit off my game; not at work but when I can relax at home. It is harder still when that client is so like Levi; in age, in what he plays with and in what he loves. I am still really raw from this. I do so much better when death is 'expected' or even 'a blessing'. I can always say to myself that there is a release in those, even when the death is a child, or even my own beloved son. This is harder for me to justify in my own skull.
I dreamed about them both last night; not Frankie and Levi but Frankie and the little guy that died, lets call him John. It is a strange thing for me to dream at all. Normally I don't remember dreams and if I do, they are bad dreams, but this was perhaps a gift. I dreamed about Frankie and John running toward me. I remember them both smiling and laughing. I remember that they were running; without weakness, without respiratory distress. It was just two little laughing boys running. It was lovely. Perhaps it was a gift. Perhaps it was a glimpse into heaven; a heaven without Pulmonary Hemosiderosis or Duchenne Muscular Dystrophy. That is a heaven that I would strive for. It reminds me to look at the world the way I looked at it after Frankie's death.
When Frankie died I found the world almost unbearably beautiful. I was lonely without him but was able to get real pleasure from things that most people forget to look at. I found that sunsets were heartbreaking and I could watch the leaves moving in the wind for hours. I could see beauty in everything, not just the standard things. After Frank died, I felt that God was so much closer to me, but it wasn't because God was closer but because I had changed and I could feel how close he had always been. I saw the beauty that had been around me all along.
My God is not the standard one, nor is my heaven. I am sure of both of those things, but that is about all I am sure of. I don't see heaven as a place where a ticket collector called Peter cashes in your Jesus card as you pass through, throwing out those without a ticket. I would never understand that at all. I can only believe that is not the case. I can hope that Frankie and John are happily playing together, perhaps with Ethan under the watchful loving eyes of my father and brother. I will think about that as I go to sleep tonight and maybe, just maybe, I'll look into heaven again tonight, even if it is just my mind leading me there.