I am at the conference in Fort Lauderdale. I am learning some things but it is nice to actually feel like I am actually up to date on some of this stuff. Massive things are happening around us in USA but in the conference, there is just this single minded vacuum, that is great in some ways and a bit scary in others. Colorado Springs is on fire and this is now the biggest fire in Colorado's history. The highest court in the land, just upheld 'Obamacare' and it has been interesting to watch the uproar that has caused across the news stations and Facebook. It will be interesting to see how this gets implemented in a nation that seems to have the best and worst health coverage depending on your zipcode and employment status. One of the slides about scoliosis in this conference was a nineteen year old who had not had health coverage, in a major city in USA. I would love to see Obamacare do something about that difference. I am hopeful that it will.
I guess this conference is about hope for these boys. As the drugs to slow the progression of Duchenne Muscular Dystrophy get closer and closer to pharmacy shelves, there is more hope, but again it is a guarded one. The drugs only are designed for some of the kids, and they still have to pass FDA testing. I am nervous that it will be a long time before we can treat DMD like Measles and just inject kids with a cure when they are born.
Just a couple of days more of sitting inside. Yes, it is torture for me to sit inside on these beautiful days when I could be swimming! At least with the new iPad I can play games at times when they are talking about something that I don't need!
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